Fighting Back with Fitness and Community

Photo by Darrin Phegley

The Henderson YMCA has become a beacon of hope for individuals battling Parkinson’s Disease, thanks to an innovative exercise class led by Annette Garrison and with the help of a local couple personally affected by Parkinson’s, Sylvia and Jim Hunt.

This class not only offers physical benefits but also fosters a sense of community and empowerment among participants. The development of the program locally, inspired by Annette’s connection with Sylvia and driven by a mission to make a difference, has made a significant impact, not just for Sylvia and her family, but also for many others diagnosed with Parkinson’s in Henderson.

Parkinson’s Disease

Parkinson’s disease (PD) is a progressive neurodegenerative disorder characterized by motor and non-motor symptoms, including tremors, rigidity, and balance issues, according to the Parkinson’s Foundation. The search for effective management strategies has led to innovative approaches like Rock Steady Boxing, a non-contact boxing program specifically designed to improve the quality of life for those living with PD.

Launching Rock Steady Boxing

The story of Rock Steady Boxing began with a personal plea from Sylvia Hunt, a friend of Annette’s. Sylvia, who had been silently battling Parkinson’s, reached out to Annette, sharing her struggles and the lack of local resources for individuals with the disease. Sylvia’s vulnerability and determination sparked a mission in Annette to bring a specialized exercise program to Henderson – Rock Steady Boxing.

“It was something put upon me that made sense,” Annette recalls. “This was a program that Henderson County needed.”

Annette’s experience in creating programs for the YMCA were instrumental in launching the class. She secured a $3,000 grant from the Partnership of Women, along with subsequent grants from Rotary and Deaconess, which enabled the purchase of essential equipment and the development of a structured program.

The class officially launched on April 1, and its immediate success was evident. “The first week we had 12 people. Today, we are up to 18,” Annette said. The program has grown steadily, becoming a vital part of the community.

Sylvia’s Story

Driven by a desire to educate others about Parkinson’s and promote the benefits of exercise, Sylvia, supported by her husband and local community, played a crucial role in establishing a Rock Steady Boxing program in Henderson.

Sylvia Hunt’s journey with Parkinson’s disease began in 2019, a period marked by personal loss and newfound challenges. Sylvia’s diagnosis, just four months before her father’s passing from the same condition, underscored the familial burden of Parkinson’s. 

Sylvia Hunt’s life changed dramatically when she was diagnosed with Parkinson’s Disease. At first, the news was devastating. “I couldn’t walk straight, and my husband noticed my posture and stride were changing,” Sylvia recalls. “I realized I needed to fight back, not just for myself but for others facing this disease.”

Sylvia noted that following her diagnosis, she had lost confidence and was not only embarrassed by her symptoms, but was afraid her children might also receive a diagnosis. This was a thought which fueled her to become an advocate for education on the disease and more programming and initiatives to help slow the progression in those affected by it, prompting her to set the meeting with Annette that jump started Rock Steady Boxing.

This initiative not only improved Sylvia’s physical abilities but also transformed her perspective on life and community. Reflecting on her journey, Sylvia emphasized how Rock Steady Boxing encouraged her to open up and connect with others, breaking through her initial reluctance to seek support.

Reflecting on her journey, Sylvia remarked, “I want to fight more for this for other people. And I got to meet more people … and it’s changed me because I started to open up more and let people in.”

Rock Steady Boxing offers tailored exercises aimed at improving agility, balance, and overall fitness, specifically targeting the motor symptoms of Parkinson’s disease. Sylvia’s participation in the program not only strengthened her physically but also bolstered her confidence and social engagement. She noted significant improvements in her ability to perform everyday tasks, such as sitting and standing unaided, demonstrating the tangible benefits of regular exercise in managing Parkinson’s symptoms.

Jim Hunt, Sylvia’s husband, highlighted the transformative impact of Rock Steady Boxing on Sylvia’s health, noting, “Her health is improving … I can see her strength and balance improving physically, but also the mental part because of seeing others benefit from it brings her a lot of joy.”

“She’s now attending classes twice a week, which was unimaginable before,” he said.

Moreover, Sylvia highlighted the emotional support provided by Rock Steady Boxing’s community. The camaraderie among participants fostered an environment where she felt understood and encouraged.

What Happens in Class?

Rock Steady Boxing is far more than just boxing. Participants engage in a variety of exercises designed to improve their physical abilities and cognitive functions. The class includes activities like:

 Boxing: Using heavy bags and speed bags, participants perform various boxing drills.

 Weight Training: Strengthening exercises using weights.

 Cardio Workouts: Aerobic exercises to boost cardiovascular health.

 Agility Drills: Activities involving ladders and dots on the floor to improve coordination.

 Cognitive Challenges: Multitasking exercises like solving multiplication problems while throwing a ball.

Each session starts with a warm-up and a “Get to Know You” exercise, fostering a supportive environment. Participants, referred to as “boxers,” often engage in vocal exercises to maintain vocal cord strength, a critical aspect for those with Parkinson’s.

The Impact

The positive effects of Rock Steady Boxing are manifold. Participants have reported significant improvements in their ability to perform daily tasks and their overall quality of life. Annette shares touching stories of transformation, such as a man who, initially confined to a wheelchair, now actively participates in exercises and another who, from barely moving, now shows expressions and engages more dynamically.

Caregivers, often spouses, also benefit from the program. They participate as “corner persons,” supporting their loved ones while also engaging in the exercises. This dual benefit enhances the well-being of both the individuals with Parkinson’s and their caregivers.

Annette emphasized that the development of Rock Steady Boxing is a collaborative one, starting with Sylvia and her story that got the motions in gear to start the class in Henderson, down to volunteers, including physical therapists like Tracy Martin, who play a crucial role in the program’s daily operations. Annette highlights the importance of a strong support team, noting, “I could not do this program without [Tracy]. We work really well as a good team.”

The program’s influence extends beyond the exercise class as well. Annette integrates aspects of Rock Steady Boxing into other YMCA programs, like SilverSneakers, broadening its reach and impact.

The program’s success has created a strong foundation for future growth. Annette envisions expanding the number of classes and incorporating more volunteers to meet the increasing demand. “Right now, we’re just doing the two classes. To add more, we will need lots more volunteers,” she explains.

Advocacy

Sylvia and Jim also started a local support group for those diagnosed with PD and their families and caregivers. In rural areas like Henderson, support groups are vital resources for people with PD and their caregivers, offering education, emotional support, and practical advice on managing PD symptoms and navigating healthcare systems, Jim noted. 

“Our support group is like a second family,” he said. “We learn together and support one another through the ups and downs of PD.”

These groups not only provide crucial support but also raise awareness and advocate for better healthcare services in underserved areas. “Sharing our experiences,” Jim emphasizes, “helps others understand PD better and ensures more support programs like RSB.”

To learn more about Rock Steady Boxing and other initiatives to support those diagnosed with Parkinson’s Disease, call Annette Garrison with the Henderson YMCA at (270) 827-9622 or stop by in-person at 460 Klutey Park Plaza Dr, Henderson, KY 42420.